PHOTO GALLERY: DELANY DEAN PHOTOGRAPHY

The images in this slideshow are a selection from my online gallery, Delany Dean Photography. If you'd like to see the images in full-screen mode, just roll your mouse over the slide show image, and click on the box on the lower-right corner.

I'd be delighted if you'd stop by my gallery, and look around.

Tuesday, August 12, 2008

The Challenges of "Mild" Dementia

Haven't been posting much lately, this has been an odd period of waiting-to-see for me, since my mother went from the nursing home back to her house. She has "mild" dementia, and that stage of the disease (very likely Alzheimer's) has its own set of challenges. In some ways, "mild" would seem to be a really good adjective to have in front of "dementia." And of course it is a good thing; but it also is a time of changes, a time of very difficult adjustments, and a time of confusion both for patient and for caregivers.

Sometimes my mother seems completely "normal," conversing the way she always has. And, certainly, she believes that she is "normal," and is complaining more and more loudly about the presence of caregivers in her house. Yesterday, because she was doing well, we cut back from 24-hour care down to 18 hours per day of in-home care, so that she has from 3pm till 9pm on her own. And, when I called her at 6pm, she demanded that I go over to her house to "turn down the refrigerator... because it is old." Also, to turn off the TV... she could not find the "off" button on the remote. When I told her I would not drive over there to turn appliances on and off, she became very angry... and another of my old dilemmas presents itself anew. If I begin driving to her house to "turn down" the refrigerator, and operate the TV, then soon I will find myself there all the time, changing channels for her and turning her thermostat up and down... and of course I can't do that. And, also of course, my mother is and will be very angry about that.

So, from day to day, we'll see what challenges arise. And I will try to address only the ones that are right in front of me, avoiding the temptation to jump into the unknowable future and the scenarios that I fear will unfold.

2 comments:

Rughooker said...

My mother has mild dementia, too. In order to get her out of the nursing home, I had to agree to be her caretaker. I closed my shop (which I should have closed sooner with the economy so bad), left my farm, and moved into my mother's house. We have huge arguments and disagreements - mostly about her going to bed and taking showers, she doesn't like having our roles reversed - but this last year and a half has been extremely rewardng. My mother helped me recover completely from the paralysis of polio and now I am beginning to feel I am now able to repay her. I don't miss my "real" life at the farm and the shop, we go to the farm each day to feed the animals, and I might be able to open the shop a few hours at a time (while Mother sleeps) if the economy improves. A few very close friends have maintained our friendships and that has indeed helped, but, all in all, I am very glad I can be here for my mom. The "challenges" have become opportunities.

Sharyn said...

Thank you for sharing your experience, I quoted you on my blog this morning. Please let me know if you'd rather I didn't. Sharyn/Quirkeries

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